Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.

Bill Number: HRES 1133|Origin Chamber: House|Status: Referred to the House Committee on Energy and Commerce.|Policy Area: Health

TL;DR

What

Designates Nov 7 as Shwachman-Diamond Syndrome Awareness Day.

Who

Rep. Kean (R-NJ) and Rep. Gottheimer (D-NJ).

Status

Introduced; referred to House Energy and Commerce Committee.

The resolution would officially recognize November 7 as a day to increase public awareness of Shwachman-Diamond Syndrome (SDS), a rare genetic disorder affecting bone marrow, pancreas, and skeleton. Sponsors Rep. Kean (R) and Rep. Gottheimer (D) are both from New Jersey. Being in committee means it hasn't yet had a floor vote; most awareness day resolutions pass easily.

Cosponsors

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Where Is This Bill?

Introduced

Committee

House Vote

Senate

Law

Introduced Mar 24, 2026

This bill is under review by a committee. The committee holds hearings, gathers testimony from experts and stakeholders, and may propose amendments. If the committee votes to advance it, the bill moves to the full chamber for debate and a vote.

If This Passes, You Might Notice

•November 7 may be officially recognized as SDS Awareness Day in official U.S. records.
•Increased public awareness of a rare disease affecting about 2,000 Americans.
•Potential for more research funding discussions, but no direct spending changes.

The resolution itself does not create new programs or spending. However, by officially designating a day, it signals congressional support for raising awareness and potentially encourages future legislative action. For the general public, you might see more educational materials or events on that date. The main impact is symbolic, not regulatory.

The Debate

Supporters Say

Supporters argue designating a day raises awareness for a rare, underdiagnosed disease and encourages research.

Critics Say

Critics may question the need for a federal resolution for one disease, arguing it sets a precedent for many similar requests.

Supporters note that SDS is often fatal and under-recognized, so a designated day can help patients and families. Critics might argue that while well-intentioned, Congress spends time on symbolic resolutions that could be used for substantive legislation. No organized opposition is documented in the bill text.